Last year around this time, I wrote a post telling you all about my nephew Ben being diagnosed with Duchenne Muscular Dystrophy. In the past year, my sister has gone through the heartbreak and the grief of learning what was in store for her son and her family. She went through a bit of depression about it, because it wouldn't have been normal for her not to have gone through it. She's better now and she and her husband have accepted their reality and faced this thing head on. They attended a conference for Muscular Dystrophy this summer in Chicago, helped to raise money through Run for Our Sons and have taken Ben to the best doctor in the country for his disease. My friends and family are constantly asking me about Ben and how he is doing. The answer for that right now is, he is fine. He is delayed, sure, but right now he is a normal kid. He can't keep up with other kids his age, but he does his best and most people wouldn't realize there is something wrong. Not yet. The disease won't really start to effect him for another 4 years or so. Hopefully with the steroids he's on now, even longer. My sister is hoping that there will be new treatments soon, and if there are, Ben is a good candidate since he is still so young, and the disease hasn't had a chance to completely get to him yet.
Of course in order to find new treatments there has to be research and testing. In order to have research and testing there has to be money. It always comes back to the damn money. If only everyone had Bill Gates money in the bank. Unfortunately, 99.9% of us don't. So in order to get money for things like this we fund raise. This Sunday night is the MDA telethon on ABC. Looks like it might be quite entertaining this year, so check it out and pick up the phone and donate a few bucks. OR....
I know by this point all of you have seen the ice bucket challenge. I mean you have to be living under a rock to NOT see it. I know others have come up with different challenges now for different charities. My sister, Beth, came up with this one for MDA. Personally I think it's better than the ice bucket challenge because you're not wasting water(especially if you live in drought land SoCal like me) and it's way funnier. Plus it's not dangerous. Have you seen some of the ice bucket challenges gone wrong? Anyway- it's called the Pie in the Face challenge. Fairly easy and the same concept as the ice bucket. Get a disposable pie plate, fill it with cool whip and have someone smash it in your face. Make sure to nominate other people to take the challenge for MDA, post on Facebook and go donate to Ben's Buddies for Muscular Dystrophy. I'm posting the three my girls did last week. You can hear from all our giggles how much fun we had. And oh poor Georgia!
Of course in order to find new treatments there has to be research and testing. In order to have research and testing there has to be money. It always comes back to the damn money. If only everyone had Bill Gates money in the bank. Unfortunately, 99.9% of us don't. So in order to get money for things like this we fund raise. This Sunday night is the MDA telethon on ABC. Looks like it might be quite entertaining this year, so check it out and pick up the phone and donate a few bucks. OR....
I know by this point all of you have seen the ice bucket challenge. I mean you have to be living under a rock to NOT see it. I know others have come up with different challenges now for different charities. My sister, Beth, came up with this one for MDA. Personally I think it's better than the ice bucket challenge because you're not wasting water(especially if you live in drought land SoCal like me) and it's way funnier. Plus it's not dangerous. Have you seen some of the ice bucket challenges gone wrong? Anyway- it's called the Pie in the Face challenge. Fairly easy and the same concept as the ice bucket. Get a disposable pie plate, fill it with cool whip and have someone smash it in your face. Make sure to nominate other people to take the challenge for MDA, post on Facebook and go donate to Ben's Buddies for Muscular Dystrophy. I'm posting the three my girls did last week. You can hear from all our giggles how much fun we had. And oh poor Georgia!
See? Funny! So I encourage all of my readers out there to share this post on your FB page and then go do the challenge yourself. I officially challenge anyone who reads this post to do the Pie in the Face challenge for Ben's Buddies and MDA. Let's make this thing bigger than cold water being splashed on people and raise just at much money as that cold water did for ALS.
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